Down syndrome parents consider "If I could go again…"

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If I could go again to the time earlier than my son with Down syndrome was born, I would wish to know that the emotions of anger and disappointment I was feeling have been regular. I would wish to know that even when I was scared and unprepared, it didn’t imply that I wasn’t meant for this job. And I would wish to know that no matter I nervous my little one wouldn’t be capable of do, that he would do all of it, and a lot extra.

Down syndrome

Daniel, my now 7-year-old with Down syndrome, at 7 months.

special needs Whitney Barthel

Daniel this summer time.

After years of parenting a toddler with Down syndrome and connecting with many, many like-families, I have found most of us began out on the identical journey. Many people mourned the lack of the kid we thought we might have. Then once we rapidly fell head-over-heels in love with our child, have been utterly ashamed of our emotions of disappointment, anger, and worry.

Down syndrome

Daniel and me this July.

Fortunately, since Daniel’s prognosis nearly eight years in the past, I really feel there has nearly been a Down syndrome revolution. Parents of youngsters (and adults) with Down syndrome have discovered their voice and have taken the world by storm.

This together with a couple of new and superior reveals depicting life with Down syndrome have actually proven everybody how superior and regular it may be having a toddler with Down syndrome.

Final week, a UK actuality sequence that follows the lives of 5 roommates with mental disabilities titled The Specials launched a ten-minute video of parents preaching “if I could go again.”

It’s the video each new Down-syndrome guardian wants, and each seasoned guardian like myself needs they’d as a brand new guardian.

As a guardian who acquired a prenatal prognosis, I would have given something to listen to not solely how exhausting issues could possibly be, but in addition all of the issues mentioned on this video.

See additionally:
If I could write a letter to my pre-Down syndrome self, right here’s what I’d say
My child with Down syndrome taught me pleasure I had by no means identified
What medical doctors ought to let you know about having a child with Down syndrome

 

Pictures by Whitney Barthel

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