What doctors should tell you about having a baby with Down syndrome

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My baby won’t ever have the ability to trip a bike, learn a guide, or depart house. How will I really like this baby that can certainly at all times be a burden?

These are among the ideas that hang-out me now, seven years after receiving my son’s prenatal prognosis of Down syndrome. Now, with my son in my arms, I’m embarrassed and ashamed of those nasty — removed from the reality — concepts that ran by my thoughts.

Down syndrome

So why do I share them? I share them as a result of they’re the ideas of so many dad and mom like me who got a prognosis. And with that prognosis, no hope.

special needs mom Down syndrome

You see, dad and mom like me are normally (normally, not at all times) sat down after receiving a prognosis from doctors and genetic counselors, and given the worst-case situation. The specialists say issues like “coronary heart situation, psychological and bodily retardation, therapies, high quality of life, and shortened life expectancy.”

You suppose, “My God, how am I going to do that?”

The unhappy fact is by attempting to organize us for what may go flawed, healthcare suppliers neglect to tell us what may go proper.

Down syndrome brothers

Perhaps what must be stated is that this, “Congratulations in your baby boy/woman! Your take a look at does affirm he/she most probably does have Down syndrome. Now earlier than I tell you among the well being considerations we might want to look out for, I’m going to tell you this. Your baby will nonetheless be a baby. They are going to nonetheless have the flexibility to snicker and play and be naughty. He/she could have options from you and your partner. When you take a look at him/her you gained’t see Down syndrome, however your spouse’s skinny legs, or your husband’s impossibly straight hair. And from the dad and mom I do know who’ve misplaced their baby with Down syndrome in utero, throughout childbirth, or not lengthy sufficient after, residing with out their baby is rather more tough than being blessed sufficient to reside with them.”

Down syndrome

What doctors don’t tell you is, alongside with the heartache and frustration that may go alongside with elevating a baby with particular wants, you may even get to expertise pleasure, grace, and happiness that solely dad and mom on this very journey will ever get to expertise.

See additionally:
I don’t have to increase my baby with Down syndrome, I get to
My baby with Down syndrome taught me pleasure I had by no means identified
If I may author a letter to my pre-Down syndrome self, right here’s what I’d say
Video: Meet the couple who’ve NINE children with Down syndrome

 

Pictures by Whitney Barthel

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